Friday 21 June 2013

The Marvelous Canteen Cancer Perk

The amount of happiness in my life is ridiculous. At precisely two seconds ago I decided I would never sleep again as I don't want to miss out on any of the happiness that could possibly occur while I am asleep. I realized this was ridiculous after thinking it but I understand pain and sadness but I also understand happiness. I, very fortunately, experience a lot of it.

My memory is shocking, I mean BAD! So I carry around this little notebook in which I organize my life and by this I generally mean my social life. Just looking at it simply shows how much happiness and love I have in my life. Everyday there is some person to see, something to do, some wonder which is to happen.

This week on Thursday I had yet another cancer perk. This time it was Canteen that was the generous organizer. Canteen have this grant called the palliative care grant and it's for all kids dying of cancer to create memories and who doesn't want more wonderful memories?

When I was in Amsterdam on my bucket list trip I wandered past this shop which was about two doors down from our apartment and there was this dress. It was simply sitting there waiting for me. The lovely Jannie agreed with me and gave it to me and we have been inseparable ever since.

The problem I found with this simply fabulous dress was that it was so 1920's it was almost costume-y so in true me style, I decided I would have to create events I could wear it to. Lucky for me the Great Gatsby has come out.

So I decided with the palliative grant money I would make my friends dress up in true 1920's fashion and have a wonderful lunch at my favorite restaurant then watch the Great Gatsby.

It was a wonderful day combing delicious food with glorious company while wearing a simply spectacular dress. It was such an unbelievably wonderful day.

And just to add to the unbelievable-ness of the day I have a good photo sibling photo!!!

  


Friday 14 June 2013

The Most Spectacular Surreal Day

This week I have had one of the most utterly incredulous days of my entire life. It was stupendous, rapturous and multiple other exuberant adjectives. It was simply a wonderful day.

Sometimes I sit around and wonder is this how I should be spending the last of my life and days like this remind me that I am incredibly lucky. I may be dying but 98% of the time I am incredibly happy and this day was definitely among one of my happiest.

So now to tell you about this frabjous day, callooh callay! My friend Hannah & I had the astounding privilege of being taken onto the set of The Hobbit by the wonderful Philippa Boyens. I actually had the most magical day, I got to see some amazing sets and I got to meet some amazing people. It was surreal.

It is truly a day I will never forget. As the wonderful Hazel-Grace would say 'BEST CANCER-PERK EVER!!!'

However the set of the Hobbit is tippy-top secret and even if I tried I couldn't describe how unbelievable my day was.

 Oh wait! I guess I do have a photo with Orlando Bloom and Evangeline Lilly!





Monday 10 June 2013

A Little Dream Of Mine

There are some things in this life I will never truly understand and how we let others kill themselves through lack of knowledge is one of them. This week Boulcott has been doing fundraising for the forty hour famine. 

It makes me so sad to think about like I know more than most that dying sucks. There is nothing I can do to change the fact I am dying. Absolutely nothing. Yet there are so many people out there dying from things which are curable and that sucks. 

I have had so much love in my life, so much happiness. I have been unbelievably lucky I have been in the time that I have lived yet I hate the fact that I will never grow old. I accept that this is the way it has to be but I desperately wish it wasn't.

I had really big dreams. I really wanted to become a humanitarian aid worker and trust me when I say this is not an easy field to get into. I had a 5 year plan which listed ways in which I could achieve these goals. I won't bore you with the details because the fact is it will never be a reality. It will forever just be a dream of what my future could have been like. I know that writing a blog entry isn't really a big deal but in some small way even though this is sort of preachy (sorry!) by doing this I feel like I am able to help people and that is all I ever wanted to do. 

Wednesday 5 June 2013

Gym Bunny

I do not understand gyms. Seriously, the idea of running when you are not chasing/being chased, is ridiculous! What makes it even more ridiculous is that you don't even move so it's not like you get some well deserved treat at the end. Yet somehow I have found myself as a member of one.

Actually I know exactly how I became one, doctors orders. Sometimes I enjoy doctors orders. Anne says I am to eat whatever I feel like and not worry about calories. I like these orders even if I was already doing this. I am also supposed to be doing 15 minutes relaxed exercise a day. This is not bad either especially since I love swimming!

I am now a member at Habit gym and I went swimming for the first time today! It is actually really relaxing. I do especially enjoy lounging in the spa afterwards.

Maybe it's lucky I am dying otherwise I would become the fattest person alive!!!

Maybe people should run even if they are not being chased. Or they could get a dog. Then they could walk the dog.